HomeSupport for registriesInternational Collaboration on Cancer Reporting (ICCR) Cancer Datasets

International Collaboration on Cancer Reporting (ICCR) Cancer Datasets

The International Collaboration on Cancer Reporting (ICCR) is a non-profit organisation incorporated in 2014 to develop internationally standardised and evidenced-based checklists for the pathology reporting of cancer. Now with 12 sustaining members, the ICCR has representation on 5 continents.

The ICCR has 31 datasets published and made freely available on Thirteen (13) additional ones are in development in sync with the WHO Bluebooks publication cycle. The goal is to develop datasets for the most commonly diagnosed cancers world-wide, accounting for approximately 90% of all reported cancers by 2021. While the datasets are intended to provide pathologists worldwide with evidence-based checklists for the reporting of cancer, it likewise beneficial to have standardised datasets for cancer surveillance and registry purposes. 

A standardised approach to reporting improves the quality and completeness of a pathology cancer report. In addition, use of standardised checklists enables pathologists to keep abreast of the latest information relevant to each cancer. While the Colleges of Pathology of the USA, UK and Australia and other organisations around the world have produced their own standardised cancer reporting datasets for national use, these organisations along with the Canadian Association of Pathologists-Association Canadienne des Pathologists (CAP-ACP) in association with the Canadian Partnership Against Cancer (CPAC) and the European Society of Pathology (ESP), have realised the benefits of aligning pathology cancer dataset development internationally and started the ICCR.

The production of ICCR datasets can significantly reduce the development effort for those organisations developing their own cancer checklists such as CAP and RCPath, and allows these countries to align and normalise their pathology cancer data. The protocols also provide a means of achieving an international standard of pathology reporting without significant investment amongst many countries, especially the low and middle income ones, which lack the resources for their own cancer dataset development.

Several of the ICCR datasets have been translated in Spanish, French and Portuguese thus facilitating usage in countries where English is not the reporting language. There are also plans to translate the datasets into other languages including German, Russian and Chinese.

In time, as the ICCR datasets are adopted, more accurate, standardised data will be sent to the cancer registries allowing better accuracy in comparisons of diagnostic, prognostic and predictive cancer pathology information worldwide.

To contact ICCR:
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T: +61 2 8356 5828


ICCR relationship diagram 2019b

 ICCR's Relationship Diagram


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