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Danish Cancer Registry Profile Page
Danish Cancer Registry
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Health Documentation
Danish Health Data Authority
Ørestads Boulevard 5
Copenhagen S
DK-2300
Denmark
Mrs. Lise Højsgaard Schmidt

Description

Registration area

The Danish Cancer Registry covers the Kingdom of Denmark (excluding Greenland and the Faroe Islands), an area of 43 080 km2. In 2005, the population was 5.4 million.

Cancer care facilities

Free health care is provided to all residents. Cancer surgery is performed at general hospitals and oncology centres, and 23 pathology laboratories service the hospital departments. Non-surgical cancer treatment is partially centralized at five university hospitals with radiotherapy and oncology expertise. National cancer control plans were formulated in 2000, 2005, and 2008. The 2005 plan included integrated pathways for cancer diagnosis, which were implemented in 2008–2009.

Registry structure and methods

The registry began systematic data collection in 1943, and registration has been mandated by administrative order since 1987. The registry was run by the Danish Cancer Society until 1997, when it was transferred to the National Board of Health. In 2004, paper notification was replaced by electronic notification through the Danish National Patient Register, and linked with the Danish Pathology Register and the Danish Register of Causes of Death (Gjerstorff, 2011). The registry is staffed by employees filling two full-time equivalent positions. Data validity is ensured by daily manual quality control routines, automated data checks, and the use of multiple notifications from different data sources. Before the use of electronic notification, the data were 95–97% complete (Storm et al., 1997) and are now considered to be more complete. Additional information is obtained from other registries through linkage. The registry adopted ICD-O-3 coding in 2004, and registrations from 1978–2003 have also been converted to ICD-O-3. Registration of TNM stage is mandatory.

Interpreting the results

Organized mammography screening was initiated in two regions (covering 20% of the population) in 1991 and nationwide in 2007. Prostate-specific antigen (PSA) testing is not promoted in asymptomatic men.

Use of the data

Registry data are used extensively for research and can be accessed and tabulated from the NORDCAN database (http://www.ancr.nu/), which includes annual data since 1943.

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